When I first tell people about Liam's TS, the typical reaction is "Oh my goodness, I'm so sorry, how did you know!?" or "Really? I've never noticed anything"
The funny thing is, I have known for years, but was putting off a diagnosis because I wasn't ready for it. When Liam's tics first started I was alarmed and brought him to the pediatrician who told us that many kids have tics and grow out of them and I shouldn't worry. I went with that FOR YEARS. Until it became an issue in school.
Once we got the diagnosis, one of our biggest comforts has been the Tourette Syndrome Association. One of Liam's first comments after we got the diagnosis was something to the effect of "why am I the only one who has this". I had him sit down at the computer and read That Darn Tic, which is a newsletter written by kids with TS for kids with TS. I was able to show him pictures of other kids with TS who were his age, had similar interests, and were talking about their TS. It was amazing watching his attitude change when he realized he wasn't alone.
We were also able to start going to support group meetings. Liam and I walked into our first TS meeting with hesitation, not sure what to expect. We were greeted with a sweet smile by AnnMarie, a mom whose teenage daughter has TS. She asked if we were there for the support group. She showed us where the kids were meeting and I sat with Liam while he got comfortable with the other kids. Once I got him settled in, I headed over to the parents' meeting.
It's been 7 months since our first TSA meeting- we went to the October meeting the other night. Liam was so excited he was bouncing up and down when I told him it was time to head out for the meeting. He had a great time, as did his little brother. As for me, as heart wrenching as it is talking about what our kids are going through with this, and what we're going through trying to parent kids with TS, it's the most wonderful feeling to have a group of people who just totally "get it". Sometimes there's answers and exchange of ideas. Sometimes there's just talking, listening, and understanding. Either way, this is where I know me and Liam can feel totally comfortable.
Its so wonderful that you guys have a support group! We had one for a while till the lady who lead it had to stop for medical reasons. We miss it and hope it will start up again. Tyler enjoyed meeting other kids with TS and for me I totally know how wonderful it felt to have someone "get it." Its a great feeling!
ReplyDeleteLori
It is wonderful- you should restart yours! :)
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