Tuesday, May 10, 2011

Our first HRT success

I started writing a very long entry earlier today about our experience with HRT and how it's going so far. It was an explanation not only of the process but also a recap of our three appointments thus far. Suffice it to say, it requires a lot of hard work and retraining the way we think about TS.We've spent our first real working week with it tracking one of Liam's motor tics. This particular tic is especially upsetting to listen to -he grinds his teeth horribly. So we spent a week tracking the tics and keeping notes on how many times he had it during a particular time period, who was around,how they reacted, how Liam was feeling at the time. Then today during the session we dissected the tic. We talked about what happened during the tic and leading up to it.

One of the most difficult parts of this process is that Liam had built up such a great relationship with the therapist that we were seeing before we started the HRT, and he hasn't built up the kind of rapport and trust he had with his last therapist with the new one. This has been a huge source of stress for me -I've spent a lot of time second guessing if I'm doing the right thing for him.

So after our week of tracking and a large part of our session spent dissecting his tic,we started working on a competing response. Liam refused to try using the response the therapist suggested, insisting that it would not work.We finally came up with the idea of him pushing his tongue against the roof of his mouth,relaxing his lower jaw and letting it hang down a little bit, and taking a few deep breaths through his nose. We practiced a few times in the office before we left. He worked on doing this when he felt the tingle that he feels prior to the tic.

Later on, while we were at his music school, about to leave from his trombone lesson, I noticed him doing his competing response. I asked him about it after we left. He said it had worked, he was going to tic, but instead used his competing response. He broke out with a huge grin across his face, and iw as screaming in excitement in the parking lot.

I know we have a long road ahead of us, but if this can bring him a little bit of relief, I could not be more thrilled.

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