Ugh, just ugh.
Saturday night Liam slept over a friends house, and busy as we were, we totally forgot about his meds. He did too. Yesterday was a bad tic day, but today is our blyuck day. Liam feels just horrible- stomach ache, achey all over, exhausted, diarrhea. He's missed his meds three times now since we started, all with the same results. I posted on the National Tourette Syndrome board and asked if anyone had had experience with this. Someone answered that they had the same experience and that clonodine is a blood pressure medication as well so it really screws with the system when missed.
Thank goodness tomorrow will be back to normal.
My son took Clonidine for about 4 years. When he missed a dose he was okay, but 2 doses missed messed him up. He only took it at night-to help him sleep. Last year we had to stop it cause he had maxed the dose for his size and it was no longer working...believe it or not, he is actually falling and staying asleep on his own. Once in a while when the tics get bad the sleep eludes him. I have enjoyed following your blog.
ReplyDeleteLori
Thanks so much Lori- one explanation that I've heard is that because it is primarily a blood pressure medication, it just seems to make them feel screwy if it's not a constant stream into their system.
ReplyDeleteThe help with sleep is HUGE, glad to hear that your son is doing better with it.
Thank you so much for the nice compliment too :)